Showing posts with label Aspergers. Show all posts
Showing posts with label Aspergers. Show all posts

Thursday, June 11, 2009

The wire, the ugly wire

Ah, the end of the school year! That happy day when all the action comes to an end, when finals are taken, grades submitted and hopefully the new knowledge is banked and generating a little interest. Or not. I titled this post "the ugly wire" because with the ending of any semester many kids, whether or not they have disabilities are faced with the following choices:
1) Recognize that the time has come to perform at least some of the unpleasant tasks one has been successfully avoiding up until now.
2) Study for exams.
3) Recognize that the failure to perform the either of the above will likely result in parental disappointment, emotional discomfort and possibly loss of privileges such as video game time.

The end of the school year further compounds the ugliness because of the messy problems of credits and state standards, and the very real possibility of having to repeat a course which was difficult the first time through. While many kids find themselves in this corner, I think the kids I work with have a particularly agonizing week because there is so much stress and anxiety in having to face and make these decisions. There is also the sense of panic for parents of graduating seniors, especially those whose children have rejected special ed support throughout high school and are now taking diplomas, which effectively ends their eligibility for transition programs.
There are various reactions to the wire, and I would like to explore a couple of these. First is the classic exploration of moving the wire, pushing it out a little further in hopes that another weekend, a couple of days, a few more hours might be just what enough time to make up for six weeks of not turning in any homework. This is when teachers must just say "No."
Another is to turn in shoddy or hastily completed work in hopes the teacher will not notice somehow. Also generally not successful.
Another strategy I observed last week in many kids was the idea that a firmly held belief in one's abilities, absent any actual preparation, would be enough to pull one through a semester final exam. I find this most curious. Many teachers allow, actually encourage students to make note sheets or note cards which they are allowed to bring into exams as long as they conform to the teachers' predetermined parameters. For example a math or science teacher might allow formulas and algebraic examples, definitions etc. written on a 4x6 notecard. Kid after kid I work with failed to come in with one of these sheets. They would say "I know it all." Even when they were given specific instructions to make a sheet, or examples to copy they refused. Knowing that not having a sheet in would likely result in failure still was not enough motivation to actually do this work. It was only when I refused to even give an exam paper to several of these kids without seeing a note sheet that any of them complied, dragging a blank piece of paper out and groaning "What should I put on it?"
After taking the tests several kids were able to acknowledge that it had been helpful to have the notesheet. So they could see that. But why not choose to invest any time up front? I don't think it is coincidence, this was too many really pretty low performing kids. Maybe they were just checked out, resigned to get whatever they got. They just didn't want to risk putting effort out and then failing. Better to fail with no effort. Is there any way to alter this mindset?

One more ugly story. On the theory that experiencing some bullying in high school helps prepare you for the real world (and I am incredibly flattered that JER commented on my last post) another kid got a big dose of preparation on the last day of school. We are always on a sort of high security alert in the last week of school, trying to head off any sort of senior prank. There was a wave of school destruction a few years ago, so this isn't just paranoia. This year there was an incident on Monday of our final week which ended with the arrest of a senior, he is being charged with two felonies related to his brandishing a fake but realistic pistol at another kid. So all week there were extra police officers in the halls in addition to our usual security team and teachers posted in hallways for finals. Daniel, a sophmore on the spectrum, was in the common area waiting to take his English final. Another sophmore began verbally harrassing him. Apparently this other kid has been pulling this kind of stunt for a couple of years but we didn't know anything about it. Anyway Daniel rose to the bait and got angry. His verbal processing failed him and he lashed out, shoving this other kid. This has happened before, in our room. Daniel has a short fuse sometimes and he has hit other kids. He has been told many times that this is not acceptable behavior in high school, and would eventually get him into trouble. Well trouble happened this time. Since he was in the commons a police officer saw the whole thing, including the harrassment. As soon an Daniel shoved this kid she, the officer, grabbed his sweatshirt at the back of his neck. He was so shocked he didn't know what to do. The officer couldn't "read" his reaction because reacting properly IS the disability. Since she had no idea what he might do she handcuffed him and brought him and the other kid to the office. Daniel went home sobbing and had to come in Monday and finish his two finals. I have no idea what happened to the other kid, but I have never seen my boss so angry. We were all very upset, but had to continue with our day in order to help everyone else finish up. I was really upset until I ran into Daniel the next day at a graduation party for a mutual friend. he gave me a big hug and a smile and seemed fine, really fine. Maybe it really did help. I hope so.

Saturday, May 16, 2009

A day in the life

We had a day last week that made me wonder about how different high school is today for kids with Asperger's in particular.I'm thinking about accounts I've read like in "Look Me in the Eye" by John Elder Robison and "Born on a Blue Day" by Daniel Tammet, even Temple Grandin in "Thinking in Pictures." They all describe high school as a torture socially, if they aren't ignored they are teased and bullied. Mostly it is their social isolation that drives their pain.
We strive for better. Does that sound lame? But as adults in a mass of teenagers we cannot create social success for the kids we help by waving a wand. We can usually make sure they get assigned to groups who will be supportive when teachers assign group projects. We can be there in class as an adult presence to discourage bullying. However we cannot create social success or friendships in the larger school arena. But in our resource room we can and do make efforts to guide and create some level of practical social experience, in a conscious way. Some days we are more successful than others. Enough blathering, here's the story, all names changed:
We have staggered lunches over three time slots so kids either have lunch before, in the middle of, or after their 4th period classes. Two of our sophomores who share first lunch, Steven and Claude, are often in the room together chatting after they eat. There are always adults in there too, but we try to stay out of the boys' conversation. Our goal is to have them support each other. Their topics seem pretty random but these two use appropriate language and best of all, actually appear to listen and don't just lecture one another. They were talking when Quentin, another sophomore, came in. He sat quietly at a different table, playing with small toy he carries for a few minutes. Then he called from across the room to the other two, "What are you talking about?" Steven and Claude stopped talking and didn't answer Quentin. Quentin repeated his question. This time I said "You guys have to answer him." Claude said "I'm busy." I said "That's not an answer. You need to say something like "Quentin, you are not in this conversation right now." So Claude repeated "Quentin you are not in this conversation." All three boys remained silent after that until the bell rang. At that point Steven left the room, but Quentin and Claude stayed in. A little later Claude was sitting on the sofa reading and and Quentin came up behind him and said "Claude your hair is so greasy you look like a penguin who swam in an oil spill."
Now it is true that Claude has sensitivity issues with showers and his hair was not clean. This is something he and his family are working on. Quentin clearly knew exactly how to target Claude. By now though Claude had forgotten all about the earlier interaction and was focused only on this insult, which seemed to have come out of the blue. He pouted, then huffed, then threw his book. One of the other adults asked him to walk with her out in the halls, a strategy that is often successful. They went out, I ate and the room quieted down. Quentin, mission accomplished, took off, so there was no chance to talk to him about his behavior.
Five or ten minutes later Claude was back, still teary and sniffy, still unable to move on. He and the adult had decided to call it a day. He got on the phone to see if his mom could pick him up. Then he and I packed up his stuff and went out to meet his mom. Another kid tagged along. We went out to a beauty of a day, sunny and warm. As we sat outside Claude was calming down. I asked him if he thought it was possible that Quentin's mean comment could have been connected to the earlier incident of shutting Quentin out of the conversation with Steven. He agreed, then added "I guess I could forgive him." I asked him if he thought he might be able to stay at school now and he answered that he though he could. We agreed to wait for mom and talk to her. As we were waiting Claude related that earlier in the day, at a weekly group session led by the school social worker they had discussed Quentin's behavior. (I don't attend group) Apparently Quentin had come in late and Steven had moved across the room to avoid sitting near him. At the end of group the social worker asked Steven and Claude about it and Claude had defended Quentin, saying "He can't help the way he is." In the moment of the insult Claude had forgotten all that too. Claude's mom drove up, he spoke to her and then went back in the building to class. I talked to mom for a minute, to fill her in on the story and she left.
The next day Claude showed up with clean hair, in a great mood. Quentin was not at school, his family had gone out of town. Steven was his usual self.
So, years from now, when Claude writes his own memoir, will he remember only the pain? I'd like to think we are helping, but I'm not so sure. some of the executive function issues (see my last post) will not just go away.

Related to this I am still processing my day yesterday. I went on an field trip with my son's elementary school class, a boat ride on the Mississippi. There were about 100 kids and 8 adults. I was just an observer, someone to watch and yell at kids to slow down and not climb the rails. I couldn't help noticing the two young Aspies in the group. They attended without adult aides. One stuck with adults pretty much all the time, mostly his teacher. The other was truly alone in this crowd all day. I noticed on the bus that he got on and chose an empty seat. As the bus filled up, kid after kid got on, looked at him and the empty spot and sat elsewhere. They would rather sit three to a seat than sit with him. At last his teacher sat with him but didn't talk to him. I saw him on the boat too, always alone. Can we do no better?